A private moment to check in with yourself

Could You Be Experiencing Epilepsy Caregiver Burnout?

A self-assessment for parents, family members, and caregivers

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Caring for someone with epilepsy is an act of incredible love. But constant uncertainty, sleepless nights, medical appointments, medication schedules, and fear of the next seizure can take a toll on your own well-being.

Take a few moments to read through the statements below. Check each statement that resonates with how you have been feeling lately.

Physically, I… Feel exhausted most days, even after sleeping. Have frequent headaches, body aches, or muscle tension. Have trouble falling asleep or staying asleep. Have little energy for activities I once enjoyed. Find myself getting sick more often. Neglect my own health because I’m focused on someone else’s.

Emotionally, I… Feel overwhelmed by my caregiving responsibilities. Constantly worry about when the next seizure will happen. Feel guilty when I take time for myself. Feel anxious whenever I’m away from my loved one. Cry more easily than I used to. Feel emotionally drained or numb.

Mentally, I… Have difficulty concentrating. Forget simple things more often. Feel like I’m always on high alert. Have trouble making decisions. Find it difficult to relax, even when everything seems okay.

Socially, I… Have stopped spending time with friends or family. Rarely make time for hobbies or activities I enjoy. Feel isolated because others don’t understand epilepsy. Struggle to ask for or accept help. Feel like caregiving has become my entire identity.

Could You Be Experiencing Epilepsy Caregiver Burnout?

Your well-being deserves attention, too.